Ectodermal Dysplasia
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 A CURE FOR X-LINKED HED!!

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monkerman




Number of posts : 1
Registration date : 2007-11-08

A CURE FOR X-LINKED HED!! Empty
PostSubject: A CURE FOR X-LINKED HED!!   A CURE FOR X-LINKED HED!! EmptyThu 8 Nov 2007 - 1:46

MY NAME IS SARAH, AND I HAVE A 5 YR. OLD SON WITH X-LINKED HED. MY HUSBAND AND I ARE WANTING TO HAVE ANOTHER CHILD, BUT INTERESTED TO KNOW IF THERE IS ACTUALLY A CURE FOR XHED, I KNOW THEY WERE CLOSE AND HAD ACTUALLY FOUND ONE FOR MICE CARRYING XHED. JUST WONDERING IF ANYONE WAS UP TO DATE ON THE RESEARCH.... THANK YOU
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Mike
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Mike


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Number of posts : 188
Age : 39
Location : Middlesbrough, UK
Age : 24
Registration date : 2005-12-09

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PostSubject: Re: A CURE FOR X-LINKED HED!!   A CURE FOR X-LINKED HED!! EmptyThu 15 Nov 2007 - 2:02

First of all, hi!!

I've not heard anything about this! Do explain!?

Oh, and I've moved your message from the Technical Support forum to the ED forum!!

Welcome!
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scottgallacher

scottgallacher


Number of posts : 21
Location : Leicester
Age : 32
Registration date : 2006-03-10

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PostSubject: Re: A CURE FOR X-LINKED HED!!   A CURE FOR X-LINKED HED!! EmptyThu 13 Dec 2007 - 16:03

There is an article about this on the old ED website.

My understanding is that this involves injecting the mice feotus with a type of protein during pregnancy.

In view of the above, this is unlikely to be of any benefit for anyone currently suffering from the condition.

In addition, I think it will be sometime before we have sufficient research to give mother's to be the confident to even consider this 'treatment' for their unborn children.

Despite the above, any progress should be considered good news and may lead to a future 'cure'.

Regards

Scott
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Mike
Site Admin
Mike


Male
Number of posts : 188
Age : 39
Location : Middlesbrough, UK
Age : 24
Registration date : 2005-12-09

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PostSubject: Re: A CURE FOR X-LINKED HED!!   A CURE FOR X-LINKED HED!! EmptyThu 20 Dec 2007 - 17:38

So maybe more of a 'preventative' in unborn babies, than a cure?
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PostSubject: Re: A CURE FOR X-LINKED HED!!   A CURE FOR X-LINKED HED!! Empty

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